Category Archives: Media coverage of disability

Starting Over…

With the beginning of 2013, it seems like a good time to get back into blogging.  While it is a somewhat artificial demarcation point, it always seems like with the passing of the calendar from December, back into January, it is a good place to be “starting over“.  Naturally, this leads me to today’s earworm from John Lennon’s “Imagine”.

In thinking back on 2012, there were a number of very significant events which occurred for me.  Most of my close friends know that my father passed away.  But also, I finally got my health moving in the correct direction and I feel healthy and ready to be around for quite a few years.  For a person with a significant disability, this is important! 

Finally, in September, I was invited to a group on Facebook for people with neuromuscular conditions called “Living with M.D.”  Being connected to such a group of people who have largely had similar experiences has been incredible.  To be around smart, like-minded, successful and funny people is always good for one’s well-being.  In looking ahead for 2013, I am excited to be tackling new projects, politically, legally and from a disability rights standpoint.

Stay tuned…

Thoughts on Occupy Wall Street

My legal practice is in the area of promoting the civil rights of people with disabilities.  As such, I pay very close attention to public policy and practically everything related to politics. Both personally and professionally, I am supportive of the Occupy Wall Street (OWS) movement.  I support this burgeoning movement, not because I agree with them completely, but rather, because so far they have been the only opposing voice to entrenched power and the Tea Party.  For many in the disability community, the Tea Party and Ayn Rand inspired activists are simply too scary. 

As an example of my concerns, consider long-term care i.e., nursing homes.  Medicaid usually pays the monthly bill for people in nursing homes, but on the other side, in many instances, these institutions are owned by publicly traded, for-profit companies.  Consequently, there is a financial benefit to the owners of nursing homes to keep people warehoused, often against their will.  Under federal Medicaid rules, states are required to pay for nursing home expenses, but they are not required to pay for services provided in the community.  This results in many states simply deciding not to pay for and provide care in the community.  

Another factor behind the institutional bias is the unions representing nursing home employees.  Politicians are so desperate to curry favor with the healthcare unions that they will do anything to “protect jobs” and get reelected.  We saw this most recently under Gov. Andrew Cuomo with his Medicaid Redesign efforts; New Yorkers with disabilities were largely shut out of the “Redesign” process and bracing for some awful policies headed our way.

In New York State alone, there are approximately 10,000 people in nursing homes, under the age of 65, that have expressed a desire to live in the community and, who by all objective medical standards, could live in the community safely and at a cheaper cost to taxpayers.  In other states, the statistics are even more biased in favor of institutions and I have two friends that moved from Alabama to New York because they were looking at being forced into a nursing home.

Gradually more coherent objectives will get fleshed out and I do not expect perfection right out of the gate.  Organizers on the right have been fine-tuning their arguments since the early 60s.  If it takes the OWS a little longer than a few evening news cycles to express their message, it’s okay with me.  What I hope ultimately results from the OWS movement is a series of principled policies that promote real accountability of all those in power, whether they are on Wall Street, politics/government, lobbyists or any organization which puts its self-interest above that of the individual.

For the time being, as the saying goes, “The enemy of my enemy is my friend” and that is enough for me.

Violent Public Comments

As I have tried to explain to people, my work is somewhat nebulous and follows how the media covers people with disabilities.  Certainly, as an attorney I represent individuals and organizations, but of late I’ve been more interested in taking a more public role through my work as cohost of the Largest Minority Radio Show on WBAI.

In today’s New York daily news, there was a perfect example of something suggested by the title for this posting.  In an article entitled “It’s no Garden of Eden! Residents say adult home is abusing them” the story of a horrible adult home was conveyed. 

One might think that the average reader would be outraged and demand that more be done to help the residents.  Not so!  As is seen all too often, under the protection of anonymity, readers feel absolutely comfortable basically blaming the victims.  Without going into a comprehensive data analysis, I have seen this phenomena in a broad spectrum of publications.  Maybe this is simply part of the “human condition”.  But, it is important to at least be aware that this occurs.